Friday. That’s the plan for when Gloriana comes home. Lord willing.
What came between feeling frustrated Sunday and feeling exhaustedly excited today? Lots.
On Monday we began seriously talking about what it would take for Gloriana to come home with us by the end of the week. We wanted to figure that out because we’ve heard that little ones gain weight better at home. And we’re also simply eager to have everyone together again.
On Monday we also saw the cardiologist. He encouraged us to see whether going home with a monitor might be an option. From his review of the case, he was quite confident that her stable health made her a good candidate to go home soon. He also said that he wasn’t very impressed with her chest x-ray, meaning that he wasn’t 100% sure that she did, in fact, have fluid on her lungs. Nevertheless, it’s a good idea for Gloriana to be on the Lasix. He also told us that she was being given Captopril, which will help with her circulation. He was also very positive about how Bella was doing. She weighed in at 6 lbs, 14 oz, which is great! He thought she looked so good (and had done so well with gaining weight) that he decided she didn’t need the echocardiogram. Woo-hoo!
On Tuesday I talked with one of the nurse practitioners about Gloriana coming home. She told us that we would need to take a monitor home with us to make sure that Gloriana isn’t having any difficulties with Brady’s, and we would have to learn how to administer her medications/vitamins. We will also need to have her weighed every 2-3 days – we’re waiting to see whether a home care nurse would be available.
Today the nurses increased the dosage on the Captopril, so they want to watch Gloriana for 48 hours to see how well her body responds to it. We’re figuring that all should be okay – and of course praying that that will be the case. =)
The next couple days will include getting the car seat test done, getting training for using the monitor at home, filling the prescriptions for Gloriana when she gets home, and trying to sleep despite our excitement. I guess we shouldn’t have any trouble with that last item – we both tend to fall asleep before our heads hit the pillow! =)
Thank you. We’re feeling like the end is in sight in terms of the hospitalization, and we know how effective all your prayers have been. We know, too, that this is the end of one phase and the beginning of another, but we’re eager for the change.
We’ll be overjoyed to share pictures of us all celebrating Friday’s homecoming. God is good, all the time.
~Jeff
3 comments:
How exciting! I'm praying that homecoming goes well and eagerly awaiting pictures. ~Karen C.
Praying for you all today! I hope that things are going well and that the homecoming could occur. Just remember God is never early or late... but ALWAYS on time. Love to your family!
One of our twin daughters was also "failure to thrive" but after a week in the hospital, we were able to bring her home where she started to thrive. She was healthy other than wanting to eat. But that came with time. And we did have to have her weighed every day for about two weeks. Our life was a bit crazy with a set of twins, a two-year old and a 4-year old but that was almost 3 years ago and we've survived. God bless!
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