It’s hard to believe that a week from today will mark one month since our girls were born. What a whirlwind!
Belladia is doing quite well at home. She was released from the hospital a week ago today, and the biggest difficulty she has is being protected from her (overly) loving big sister. =) We’re just happy that Daylia doesn’t show any signs of resentment or jealousy – more than anything, she absolutely LOVES having a baby sister.
Bella and I had a good time watching the Blackhawks win the Stanley Cup last night… for a moment (just a moment) this thought cross my mind, “Wouldn’t it have been memorable to be with a group of people, at a restaurant with lots of TVs, so that it would have been unforgettable?” But then I came back to my senses and thought, “THIS is as unforgettable as it gets – no one has an experience like mine: an incredible pregnancy/delivery/several weeks and now holding this precious gift from God.” That’s all to say, I think she’ll always like the Blackhawks. =)
Gloriana has had a very memorable week, too. She started bottle feeding earlier this week; to this point, she has virtually exclusively received nourishment from the nasal feeding tube. Yesterday she did particularly well; she took an ounce (30cc) every three hours! She did so well that they decided to take out her feeding tube! Also in the last week, she was moved from a warming bed to an open air crib, meaning that she’s been maintaining her body temperature by herself. She also had the central line taken out because she’s getting enough nourishment to her tummy without supplement through the IV. And less attachments (tubes, machines, lines, etc.) mean more progress.
Things looked so good yesterday that our nurse hinted that Gloriana may even be able to come home before the end of this week!
But we hit a little snag this morning. When I visited, the nurse asked if I thought she looked a little pale. I thought that she did. Also, there were a couple times when her blood oxygen levels dropped a bit. Our nurse (Sue) said that those could be symptoms of low blood counts, so she’ll have a sample taken first thing tomorrow to test those levels. If they’re rather low, then Gloriana may need a blood transfusion to get the levels where they should be. Sue said that it may be due to the fact that she’s having so many blood tests, and her little body may be unable to keep up with the blood that’s taken.
So that’s where the prayer request is: could you please join us in praying that Gloriana’s tests will come back positive so that she won’t need a blood transfusion? Thanks.
When I asked again today about when Gloriana might come home, Sue asked when Father’s Day is. I told her that it’s a week from Sunday – June 20. “Maybe she’ll be home for that,” she said. Wouldn’t that be great? =) Then she can watch some sports with her daddy, too. =)
~Jeff
2 comments:
Atta girl, Gloriana! What great progress! We'll be praying that she won't need the blood transfusion. So happy to hear that Bella's doing well, too.
Sarah Cupery
Wow - so its been a while that i've been able to keep up with your blog, actually my hubby re arranged stuff on the computer and i couldn't find your site! So i asked Pastor Rick yesterday and here I am reading up all your wonderful updates ! CONGRATULATIONS. Another TTTS Survivors !!!! I rejoice with you, will pray for your little ones and your family, We also had to leave one behind and it was the hardest thing .... but in hindsight it kind of gradually helped us starting with one, and then another. Much of what happened with the girls - cpap, jaundice glasses happened with ours (Its so hard watching them with those glasses on, I kept thinking "how do they know we're here if they can't see us") but hubby assured us they knew. So now God has granted 4 miracles - your two little ones and ours. You'd never know it to look at ours that anything was wrong at all. They are never more than a pound from each other and their height is almost identical. At first, Caleb (the one who got everything in the womb) was always bigger - but now Joshua (the one that got nothing) has totally surpassed him! And its amazing they mimic how they were in the womb - Caleb (the one with everything) is the pickiest little eater and Joshua (who had none for 5 weeks) eats anything he can get his hands on. So glad to hear everything is going well, if you have any questions, don't hesitate to ask! I better go or I could talk about this all night!
Glory be to God !!!!!
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